Ramayana Blog

I was contacted by several people on Twitter (social network for those of you who are not a part of it) asking that Spirit Jump do something to lift the spirits of this amazing girl. I contacted her mother and asked if Spirit Jump could help and she sent this moving email in response:

“My daughter Destiny is 9 and she has Neurofibromatosis (Nf). All I do is tell her story and I spread awareness to whoever will listen. You would be surprised how many doctors and nurses that don't know what Nf is for instance here is my daughter's story.

Destiny was 10 months old when she was trying to walk. She took 2 or 3 steps and then she sat in the floor crying, there was nothing I could do to console her. Finally, after a while, I took her to the emergency room. While there they examined her and found that she had multiple fractures in her right leg and they saw the cafe au lait spots and said that they were bruises after she was misdiagnosed for child abuse.

Child Protective Services took her away and 2 days later she was seen by an orthopedic who diagnosed her with Nf. Her broken leg was tibial dysplasia and psuedoathrosis which is a congenital bone defect that sometimes occurs with NF. That's how I found out my daughter had Nf.

Destiny has had several surgeries to repair her leg but none of them helped and 2 years ago when she was 7 she had her foot amputated and she now wears a prosthetic leg as a result. She was also sent to a neurologist who found the tumor on her brain stem and the optic glioma on her left optic nerve. My daughter has to have a MRI every 6 months.

All I do is tell her story. I do it because I want the world to know what nf is. If the world knows there can be no more mistakes.

Destiny likes to read, draw, sing ,dance. She loves babies and video games and loves animals.

for all Destiny goes through she is a true inspiration to everyone. She may have Neurofibromatosis but that doesn't stop her from striving to be that best that she can be everyday and touching everyones life in the process.

two people have been battling and remain brave, inspirational and strong. Please help me lift their spirits. Just email Spiritjumper@spiritjump.com & say you want to jump Destiny's spirits.